You probably all know that childhood game where you call out a slug bug driving down the road...except we don't slug the person sitting next to us, at least not in our family. We keep track by earning points. I always wonder what my little girl sees from day to day and today she called out slug bug white on a perfectly little tan Volkswagen Beatle. I knew she had lost the ability to distinguish some similar colors, but now I see that these colors have begun to fade. A small lump began to build in my throat and I began to ask her what color each of the cars around us were. Phew! She could tell what the other colors were, but tans have now faded to white. I can handle this....well, maybe, but....can she?
We did finally hear back from the neuro-opthamologist about the fluorescein retinal angiogram. It was normal. Sadly, normal means no treatment. I guess now we wait for the genetics testing.
By the way, that test made her sick to her stomach and nauseated. We were lucky that the gentleman (who kinda reminds me of Igor) running the test stuck an alcohol pack to her nose, because as soon as he did the nausea began to subside and he was able to finish taking the rest of the pictures. Who would have figured...an alcohol prep? The next day she went to school and not too long after, I got the call to come pick her up because she had thrown up. She was a little champ and went to hang out with her grandparents for the day and they spoiled her...of course.
Thursday, September 22, 2011
Saturday, September 3, 2011
Bargaining.
The stages of grief: Denial, Anger, Bargaining, Depression, and Acceptance.
I'm not sure which one I am in. I would guess on the verge of depression, because for the last few weeks, I have wanted to blog about what we are going through, but in the back of my head I keep thinking that if I don't blog about it, then her vision won't get worse: Bargaining...Then again that may be denial.
I took my little girl to get contact lenses yesterday and got a wake-up call. Now her best corrected vision is 20/50...so it is getting worse. Not what I wanted to hear, but my little girl is ecstatic about having contacts. She can't wait to go to school! I wish I could have her positive outlook, because I have been in such a funk since hearing that 20/50. That may not sound like much, but it is getting worse and we still have no answers.
Hopefully we will hear from her Neuro-Opthamologist next week. We are waiting for a Retinal fluorescein angiogram to be scheduled and genetics testing. Meanwhile, we wait.
I'm not sure which one I am in. I would guess on the verge of depression, because for the last few weeks, I have wanted to blog about what we are going through, but in the back of my head I keep thinking that if I don't blog about it, then her vision won't get worse: Bargaining...Then again that may be denial.
I took my little girl to get contact lenses yesterday and got a wake-up call. Now her best corrected vision is 20/50...so it is getting worse. Not what I wanted to hear, but my little girl is ecstatic about having contacts. She can't wait to go to school! I wish I could have her positive outlook, because I have been in such a funk since hearing that 20/50. That may not sound like much, but it is getting worse and we still have no answers.
Hopefully we will hear from her Neuro-Opthamologist next week. We are waiting for a Retinal fluorescein angiogram to be scheduled and genetics testing. Meanwhile, we wait.
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