O.N.A.

My beautiful 10 yr old daughter was diagnosed with Optic Nerve Atrophy on July 20th, 2010. This disorder is extremely rare and without knowing the cause, there is no way of treating it. Now we wait. We wait for answers and pray for the disease to stop its progression. This is our story.

Thursday, September 22, 2011

Slug Bug White?

You probably all know that childhood game where you call out a slug bug driving down the road...except we don't slug the person sitting next to us, at least not in our family. We keep track by earning points. I always wonder what my little girl sees from day to day and today she called out slug bug white on a perfectly little tan Volkswagen Beatle. I knew she had lost the ability to distinguish some similar colors, but now I see that these colors have begun to fade. A small lump began to build in my throat and I began to ask her what color each of the cars around us were. Phew! She could tell what the other colors were, but tans have now faded to white. I can handle this....well, maybe, but....can she?

We did finally hear back from the neuro-opthamologist about the fluorescein retinal angiogram. It was normal. Sadly, normal means no treatment. I guess now we wait for the genetics testing.

By the way, that test made her sick to her stomach and nauseated. We were lucky that the gentleman (who kinda reminds me of Igor) running the test stuck an alcohol pack to her nose, because as soon as he did the nausea began to subside and he was able to finish taking the rest of the pictures. Who would have figured...an alcohol prep? The next day she went to school and not too long after, I got the call to come pick her up because she had thrown up. She was a little champ and went to hang out with her grandparents for the day and they spoiled her...of course.

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