O.N.A.

My beautiful 10 yr old daughter was diagnosed with Optic Nerve Atrophy on July 20th, 2010. This disorder is extremely rare and without knowing the cause, there is no way of treating it. Now we wait. We wait for answers and pray for the disease to stop its progression. This is our story.

Saturday, September 3, 2011

Bargaining.

The stages of grief: Denial, Anger, Bargaining, Depression, and Acceptance.

I'm not sure which one I am in. I would guess on the verge of depression, because for the last few weeks, I have wanted to blog about what we are going through, but in the back of my head I keep thinking that if I don't blog about it, then her vision won't get worse: Bargaining...Then again that may be denial.
I took my little girl to get contact lenses yesterday and got a wake-up call. Now her best corrected vision is 20/50...so it is getting worse. Not what I wanted to hear, but my little girl is ecstatic about having contacts. She can't wait to go to school! I wish I could have her positive outlook, because I have been in such a funk since hearing that 20/50. That may not sound like much, but it is getting worse and we still have no answers.
Hopefully we will hear from her Neuro-Opthamologist next week. We are waiting for a Retinal fluorescein angiogram to be scheduled and genetics testing. Meanwhile, we wait.

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